2023: Willow’s story
Willow Wright is seven years old. She lives in Franklin with her brother and parents Amber and Jay Wright. She is the daughter the Wrights never thought they would have.
Jay was one of 18 children, 14 of whom were adopted. The Wrights always knew they wanted to adopt in addition to having children of their own. Years of expensive fertility interventions aimed at getting pregnant were to no avail and about eight years ago, the Wrights found out that one of the young children they had been fostering was ready for adoption. Shortly after their first child, a 4-year-old boy, came to be a permanent part of the family, the Wrights found out that they were six weeks pregnant with Willow.
Willow will turn eight years old on May 1 . Her parents describe her as the type of kid that runs a mile a minute. In her father’s words she is “nonstop smiles and fun, doesn’t know a stranger. She’ll meet a kid and two minutes later come and ask if her new friend can come over.”
One day last fall, Willow began exhibiting flu-like symptoms, running a fever and throwing up. Jay had just gotten off of the night shift for Macon County Sheriff’s office where he works and Amber told him that Willow would need to stay home with him that day. She crawled into bed with her father and they both fell asleep.
The next day the fever had not abated and her parents took her to the doctor. Tests for the flu and other common illnesses were negative so the doctor suggested running tests for appendicitis. Instead of appendicitis, scans showed a large mass on Willow’s kidney. She needed immediate transfer to Mission Hospital in Asheville, but the ambulance wouldn’t be ready to take her until four o’clock that afternoon. Jay and Amber weren’t taking any chances. They signed a waiver and drove Willow directly over to Mission on their own.
Further testing revealed that the mass on Willow’s kidney was solid, and she underwent surgery to remove it on Oct. 26, 2022. Doctors told the Wrights that Willow had a Stage 3 Wilms Tumor, which means that the cancer found in the kidney could not be completely removed with surgery. Intense chemotherapy and radiation would follow.
“There are a lot of ups and downs, good days and bad,” said Jay. “Thankfully she has not lost her personality. If she wore a hat and you didn’t know her hair was missing, other than a little bit of weight loss you wouldn’t know any difference.”
Her treatment has been harsh. The first week after surgery Willow received radiation every day, as well as chemotherapy on the first and last days of the week. For the next two and a half months she received chemotherapy every week, with a double dose every third week.
“Those days are really rough on her emotionally and physically,” said Jay. “She feels sick and she vomits. You try to stay strong but sometimes you’ve got to walk away, cry in a corner by yourself or away from her so you don’t show it to her.”
For Jay and Amber, the grief and stress come in waves. Seemingly at random, driving down the road or glancing at a picture on a cellphone, comprehension becomes total and the emotions are too much to handle.
“For the most part, Willow’s been so strong,” said Jay. “She gets tired easily in the afternoon, things that didn’t used to bother her or wouldn’t upset her will sometimes make her just break down. My wife has been very strong. It’s probably going to hit her after all this.”
“After all this” will begin this spring, after Willow receives her last scheduled treatment on May 15.
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After Willow’s diagnosis last fall, her mother Amber made a post on Facebook to help inform friends and family of what the family was facing. Not long after, Jay got a call from Fonseca, someone he hadn’t seen in years but remembered playing sports with when they were growing up in Franklin.
“He asked if he could raise funds for Willow,” said Jay. “We were surprised and extremely thankful. One of the benefits of living in a smaller community is the output of support you get which has shown through this entire process. We were blessed, thankful and honored that he would choose Willow to be who he focused his fundraising for this time.”
Throughout all of this, Jay and Amber have witnessed their daughter’s strength, watched as she has held tight to her vivacious personality, and been in awe of her ability to remain herself.
“She makes a lot of people laugh,” said Jay. “She just wants to enjoy life and have fun and she doesn’t let anything stop her.”